Thursday, July 15, 2010 at 1:23am
He holds his arm up for me to put his jacket on. As docile as a child every mother dreams for. His thin arms slide easily through the sleeves. We take him to his doctor's appointment. He sits obediently. Not interrupting. Decisions have to be made. I turn to him and patiently explain. He sits, uncomprehending. Frustrated, I repeat my words. He catches on to one word, nods emphatically in agreement. Dr. Burris sighs. He disagrees but leaves the decision to us.
We leave the doctor's. On the way home, Patrick, my husband suggests a trip to Denny's. "Oh, he'll like that" I thought. "It'll be a treat." Patrick pulls up to the door. I take him by the arm and guide him to the door. People waiting for tables stop and take in the scene. They reach a realization and turn away.
We're seated. I ask him what he wants to eat. I decipher his answers and order for him. When the food comes, I cut his food for him. I bring the fork to his mouth. I put a straw in his milk and hold it up to him. He dibbles egg on his sweater. I wipe his mouth with a napkin.
He wants to see a movie. I suggest Avatar. Lots of action, good looking blue chicks and life affirming. Can't ask for more. He won't go without my mom. We take him back to the house. My mom refuses to go. Uses an ailing knee as an excuse. Suggests that we wait for my dad's brother to fly in from Chicago to go see the movie. I told her, in an even tone that dad may not have until Saturday.
I hear a cracked voice say, "I know I'm dying. I know she doesn't care about me." Lucidity is a bitch. I can barely contain my anger. Even Patrick is frustrated. Ashamed that my outburst brought forth such awareness from my dad, I decide to see a movie anyway. My dad won't go without my mom.
Patrick and I sat through the movie together. We enjoy it. The glare of the sun greets us outside the door and reminds us of what lays ahead.
I'm at the oncologist. My dad's youngest brother from Chicago and my friend Vida are with us. The four of us fill the small cozy examination room. Dr. Goodman walks in, radiating calm and hope. He's puzzled. My dad hadn't come in to see him for more than 5 months. I calmly explain to Dr. Goodman that I had just discovered that my dad has eschewed any medical treatments and have been eating asparagus paste, convinced that's what will truly cure his prostate cancer. However, he has been unable to eat, drink or sleep for the past couple of days. The cancer has metastasized to his bones. He's in constant pain although he refuses to admit it. Dr. Goodman takes in the information silently.
He examines my dad. I explain to Dr. Goodman that my dad now wants chemotherapy and not hospice per Dr. Burris' suggestion. That was the word he grabbed onto in Dr. Burris's office. Dr. Goodman nods, explains that tests need to be done. Arrangements are made. We walk out together. Vida hugs me goodbye.
I'm at the hospital with my dad. He's angry. He doesn't understand why he's there. I explain he wanted chemo. Can't get chemo without tests. Fastest way to get tests done and results back was at the hospital. He's unimpressed with my explanation. Pulls out his IV. Blood everywhere. I track down a disinterested nurse to put it back in. I take a break. I hear dad hitting my uncle, yelling that he deserves to be free.
They want a urine sample. They hand me a pitcher to hold over my father penis. My head spins. My uncle volunteers. I'm grateful to a man that I only met the day before.
Only the notches on the clock differentiate between the hours of monotony that is my dad's belligerence. He alternates between pulling his IV, exposing himself, hitting whomever is near and rebuking all that would listen.
I'm grimly prepared to stay the night. My uncle volunteers. He's as exhausted as I am. I call my mom. She refuses. Too tired to deal with the enormity that is behind my mother's behavior, I take up my uncle's offer shamefully. Suddenly dad demands roast duck. Ok, I can do that. Patrick picks me up and we go to Sam Woo's for duck, pork, pig's ear, stir fry spinach and rice. We get back to the hospital. I carefully debone the duck for dad. I run to the restroom. Coming back, I found my dad gnawing on the biggest piece of duck bone he could find.
It's the next day. I'm back at the hospital. My uncle is beyond exhaustion. He's been fighting the staff all night when he wasn't fighting my dad. He's been trying to keep the hospital staff from putting a catheter in my dad. He understood his eldest brother's need for dignity. The ability to urinate on his own. He lost in the end. He couldn't speak a word of English. I had the staff take the catheter out, knowing the implication for me once my uncle leaves.
My uncle leaves. And I take on the nightmare that was just my uncle's. Patrick stops by with my dad's prescriptions. My mom was reluctant to give them over. Patrick had to be insistent. I'm filled with rage.
Anna visits. Sits with my dad while I run to the vending machines. I scarf down a bag of pretzels. My dad exposes his ass to Anna and yells what is to be ashamed of, we all have the same things. Anna couldn't agree more. She chats with my dad. My dad's reluctantly placated. She hugs me goodbye.
All but one of the tests are done. We're discharged. Helping my dad put back on his clothes, I recognize it from a few days ago at Denny's. I see the same egg stain. My rage replenishes. I drive him home. I go home to my kids, haunted by my lack of strength to launder my dad's clothes.
I find the two Montessori books that I had ordered a couple of weeks ago. I pick one out carefully and hide the other book in my room. Holding the book close to me, I walk to my children's room. We read about God, different faiths and all that is life affirming. The kids soak it up.
It's the next day, I just made lasagna. I wrap it with foil and we head to my parents. We get there, I serve the lasagna. My uncle's never had lasagna. He eats it out of curiosity. My dad doesn't touch his plate. He's beyond the ability to eat. The kids eat noisily. I clean up the table, clean up the kids, wrap up the food, wrap up the kids and usher them to the door. As an after thought, I walk back, kiss my dad on the forehead and tell him I love him. Already, my head is filled with everything I had to do the next day.
It's the next day. My aunt calls. Something's wrong with dad. They need me. I call Erin. I ask her if she could watch the kids. I fill the time waiting for Erin by putting make up on. The phone rings. I pick up. A paramedic with a kind voice is on the other end and explains that dad hasn't been breathing on his own for the past 40 minutes. He is being taken to Desert Springs. My uncle's with him. Erin arrives. It's only been 15 minutes since my call to her. The kids immediately chat her up.
Patrick and I are in the car. We drive to Desert Springs Hospital. My uncle is waiting outside. He's tight lipped. We're ushered in. The staff is courteous. Too courteous. The doctor tells me what I already knew. I am shown which bed was his. It's behind the curtains. I walk through the curtains and stand by his bed. His eyes are closed. His mouth is open. My husband is on the other side of the curtains to give me privacy. My uncle, uncomprehending, stands next to me. He watches me bend down to hug my dad's already stiff shoulders, kiss his cold wizen cheeks and whisper that I love him.
Patrick and I drive back home. Erin apologizes for not cooking dinner. I pull out the book that I've been hiding. Patrick and I sit in a circle with the kids and we read about death together.